Self-Management of Young People with Chronic Conditions: A Strength-Based Approach for Empowerment and Support

Description of Self-Management of Young People with Chronic Conditions

This book focuses on young people (12-25 years old) growing up with a chronic somatic condition and/or physical disability, facing different challenges during their transition to adulthood and to adult healthcare services. Becoming an adult often proves extra challenging for them, because the adaptive tasks related to living with a chronic condition can clash with developmental milestones. Finding a good balance and integrating these tasks in daily life is also referred to as self-management.

This book addresses self-management and empowerment of young people with chronic conditions as well as the Positive Youth Development concept. It elaborates on theories and approaches and offers a complete overview of self-management interventions for young people with chronic conditions, emphasizing on the tasks of medical, emotion and role management. It also elaborates on the roles and tasks of professionals, as well as the patient-provider relationship; the shifting roles between young people and their parents and the role of peer support.

This book is unique in its broad view on self-management, i.e. it goes beyond medical management and focuses on young people achieving their maximum potential and a good quality of life. Furthermore, the book employs a positive youth development approach, focusing on empowerment and growth rather than problems or issues.

It offers an overview of the state-of-the-art and evidence concerning self-management support for young people with various chronic conditions. As such it is of benefit for all healthcare professionals working in care for young people, but also for researchers interested in this topic.

About the Author

Jane Sattoe, PhD, is a Senior Researcher and lecturer with a background in health sciences. In 2015, she defended her PhD thesis ‘Growing up with a Chronic Condition: Challenges for Self-management and Self-management Support’ about self-management of adolescents and young adults with chronic conditions.

AnneLoes van Staa, PhD MD RN, Applied Research Professor, trained as a general and pediatric nurse before graduating both in medicine and cultural anthropology. In 2003, she was appointed professor “Transitions in Care” in Rotterdam University of Applied Sciences.

Sander Hilberink, PhD, Applied Research Professor, trained as clinical psychologist. He is involved in research on transition to adulthood and lifespan care since 2006, with focus on empowerment, autonomy and long-term consequences of childhood-onset chronic conditions. He is involved in a variety of healthcare innovations, addressing not only a better transfer to adult healthcare, but also to improve citizenship while ageing with lifelong disabilities.

Read more about: Jane N. T. Sattoe, AnneLoes van Staa, Sander R. Hilberink